Info for Families

Considerations for Families

We consider participating families to be active partners rather than passive research “subjects.” We could not do what we do without participant generosity, insight and inspiration. We encourage families to get in touch with us for any concerns, questions, suggestions or other matters to bring to our attention.

Prospective participants and their treating physicians must be aware of the uncertainties involved in our study and the possible outcomes.


Is Your Child a Candidate?

The referral and enrollment process begins with a Duke physician (or a physician from a collaborating program) who encounters a patient who could meet the inclusion criteria.

Read more about how the research study works…